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Rare Diseases collectively affect around 3.5 million people in the UK at any given time. These conditions pose unique challenges due to their limited understanding, both in terms of their underlying mechanisms and available treatment options.
Our vision
The King’s Health Partners Rare Disease Network seeks to unite our clinical and research communities with the shared vision of delivering better health outcomes and improving the lives of those affected by rare diseases.
The network will raise awareness of existing research across our institutions - fostering collaboration, scale, and impact of research, and serving as a catalyst to attract future public and private investment in translational rare disease research.
The collaborations formed through the Rare Disease Network will ultimately lead to faster progress in understanding the disease, development of new treatments, and improved patient outcomes. It will be an accelerator of translation of research into clinical practice.
The King's Health Partners Rare Disease Network brings together research and clinical groups across the region - facilitating networking opportunities and creating a collaborative environment for cross organisational and transdisciplinary rare disease research.
Get involved
Catch up with our inaugual Rare Disease Grand Rounds from February and June 2024 on the Learning Hub.
If you would like to receive the latest updates, important announcements, and opportunities to engage with the KHP Rare Disease Network, please sign up to our mailing list here.
We invite you to connect with us and utilise the network for collaboration and support. Our expert steering committee can provide advice and mentorship, and connections with others other potential collaborators across the KHP partner organisations. We can also share grant opportunities and celebrate successes across our networks. If you have any events, publications, or work relevant to Rare Diseases that you would like to spotlight, please get in touch. Contact us: KHPRareDiseaseNetwork
Upcoming Rare Disease Network Events
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Event description:
Don't miss this opportunity to join members of the King's Health Partners research and clinical community, and hear from experts involved in rare diseases research.
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KHP Rare Disease Network - Driving Change for Transformative Impact
Event date and time: 12 December 2024, 8:45am to 1:00pm
MB4.2, Macadam Building, KCL Strand Campus, Surrey Street, London, WC2R 2NS
Event description:
Join the KHP Rare Disease Network for a special event to learn about the network’s vision, connect with researchers and clinicians in the field, and explore how you can collaborate with partners.
